CPAP users?
- Thread starter CatOfDaVille
- Start date
Yup absolutely recommend distilled water every night and it’s like a dollar a gallon. I think I go through maybe 2 gallons a month.
I will be looking at this when I can go home, but it will be a while. Thanks for your advice on this. I will have a very major surgery tomorrow, which will mean I will be back in ICU, but I will be looking at this, or a Dreamwear which one of my friends recommends. Well, at least I got to vote, and got to watch UK destroy Tennessee. Go Cats and stay healthy my friends.
If you have problem keeping your mouth shut at night, I found a simple trick. Go on Amazon and order micropore tape. It's like that medical tape that sticks to anything. Take small piece and tape the middle of your mouth, seriously. I tried all the jaw straps and everything but they didn't work for me, the tape worked like a charm.
HA, I can't keep my mouth shut during the day. ALWAYS gets me in trouble. I guess we are even.
True that if the mouth flops open during the night you will be air-dried within a very few seconds. That will definitely wake you up... 😆 (Had that issue when I first started wearing the CPAP masks.)
Hello, I hope this finds you well. Please give an update if you are so inclined. Thanks
Doing fine, all things considered. Still using my CPAP. Overall it has improved the quality of my sleep and my wife no longer complains of my snoring.
Philips recalls sleep apnea machines, ventilators over cancer risk
Philips recalls sleep apnea machines, ventilators over cancer risk
Medical device maker Philips is recalling sleep apnea machines and ventilators containing foam that could put users at risk of cancer or other issues.
www.usatoday.com
Same here, and I've had some respiratory issues recently as well. This year I've done chest x-rays, a pulmonary function test, and my doctor has me going to see a pulmonologist in July. I sent her a link to this article, so thanks for posting Wesley.
I noticed the article said to discontinue using until it could be repaired unless it was life threatening.
Yeah, I guess I will. That's not exactly ideal either though. I'm curious to see how quick their response is to this.
Here is a link claiming owners should receive a letter by 6/23 with log-in credentials. Looks like you can start the registration process here as well... https://www.usa.philips.com/healthcare/e/sleep/communications/src-update
I have the Dreamstation and I found out today that my model is under recall so I went ahead and registered on the website.
I also called my Dr and they advised to keep using my machine because the risks of not using it outweigh the risks of using it. Nobody has any idea when they'll be replaced. As I understand it, the Dreamstaation is by far the most used machine in the US so it might be a while before anything gets done.
If your apnea is as bad as mine, not using the machine isn't really an option, so I'm stuck between a rock and a hard place.
I also called my Dr and they advised to keep using my machine because the risks of not using it outweigh the risks of using it. Nobody has any idea when they'll be replaced. As I understand it, the Dreamstaation is by far the most used machine in the US so it might be a while before anything gets done.
If your apnea is as bad as mine, not using the machine isn't really an option, so I'm stuck between a rock and a hard place.
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I decided to keep using mine too. I don't use the solvent they mentioned but when asked, I chose I didn't know.
I also asked the VA who provided mine and told them I have private health insurance (They use that as a secondary insurance.) and told them I'd pay for a new one if that was an option.
It is agonizing to contemplate but like you I decided I need to keep using my machine. I had a couple friends die in their sleep. One a newly retired 1SG who was in as good of shape as you can be in. I am sorry to hear all are going through this... It is agonizing at best.
I have an older dreamstation too, I just thought to check that one but I bet it is in the recall too.
Edit: That one is recalled too...
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I've been thinking of getting a travel machine since in pre-covid times I was traveling at least once per month for work. I might as well go ahead and pull the trigger and use it at home until I get a new main machine.
Also, I switched to the Airfit F30 mask earlier this year on your recommendation. So comfortable and doesn't kill my nose like the Amara View. I'm never going back! Thanks for the tip!
Glad to hear it, yeah I have NEVER had a mask like this one. No issues at all. Another great thing is there is no air flowing to where it bothers my wife. I can turn straight toward her and no issues. I have two new ones stored in my closet too, I cannot wear the mask out. I have had it for well over 6 months now, probably 9 or more. With regular cleanings the thing still works so well. (I will stop, only a CPAP wearer can understand the excitement about a mask. Take Care...
I watched a video of a guy who said that the foam is made from toxic chemicals that emit from the very first use. It has been banned in other countries according to him. If not for the fact that I would have to go to the doctor for another visit to get a prescription I would purchase a ResMed machine and be done with Phillips.
Yeah, I did some research too and am hoping that not using the solvents they mention to clean will lessen the hazard to where it has not caused any issues so far BUT, I have used that for many years. It does weigh heavy on my worry meter to where it is seriously angering that this is even an issue.
How dare companies be this flippant about a product they sold/ sell... Things are seriously going on like this is just another bump in the road!
According to that guy Phillips has a history of issues with their products as well. It seems they are flippant with all their products.
Not me...been trying to find a new machine. Yeah, right...Even have a prescription.
They told me it would be months before they could replace recalled machines. My doc told me the same and unfortunately, I’m 11 months before being able to get a new machine with insurance.
Can’t use the humidifier and had to buy special filters.
Ridiculous situation
My apnea isn't at a life threatening level but it sure does effect my wife's quality of sleep if I don't use it. I have chosen not to use it so she sleeps in a spare bedroom until I can get a new machine.
I can remember several years ago when you got a loaner during repairs, also am glad I kept my older machine, albeit noisier. I tried to update my machine a couple of years ago, learned it has to totally collapse, then I would have a waiting period.
Called pharmacy that handles this.... they said there'd be a replacement in about 3 weeks.
Think I called them about 2 months ago.
Soundboutrite.
Think I called them about 2 months ago.
Soundboutrite.
Think I’m lucky I couldn’t get an upgrade to that recalled machie.
No not yet. I’m sure they’ll blame it on COVID or the chip shortage or Trump.
Last I heard the planned to replace the defective Dreamstation with the Dreamstation 2 but the FDA hadn't cleared the foam in the Dreamstation 2. It is a different insulation but I guess the FDA is being extra careful after this debacle.
I am being sent some filters that are supposed to attach to the hose to stop anything harmful from being ingested. We shall see...(Just talked with them this morning.)
Usually you can get something done pretty easily in the four or so years of use range. I have a prescription and have health insurance. (BCBS) My issue is I cannot find vendors that even have the machines. I have not checked everywhere but I have checked several places.
I just got an email saying that the repair/replacements are still on hold until the FDA approves their new foam design. In the meantime Phillips has tripled their repair kit production line so they are ready to ship as soon as the FDA gives the green light. Phillips predicts it will take approximately 12 months to complete the recall process. So there you are.
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