Not to distract from everything going on but after a whirlwind high yesterday today I’m now sitting in the pediatric ER with my 4 year old at this point basically waiting for an official Type 1 Diabetes diagnosis.
So if anyone knows someone in a similar situation for advice or words of encouragement it would certainly be appreciated.
A few things, and this post shouldn’t go against my count limit…
1- I felt helpless and broken when I went thru this and my son was 7 and just reading your post I can tell maybe you feel the same but seriously it will be ok.
2- They have so much technology now that your 4year old will be able to live like every kid out there. We have our guy who is now 14 on a G5 Pump and a Dexcom which transmits to our phone and we can manage and see his status from 1000’s of miles away.
3- I originally thought this would make life impossible and my kid would be so different. It hasn’t, he eats just like every other kid and plays just as hard and oddly is in tune with his body better than most because he detects when he is high/low on his own at this point which to me is an amazing thing at 14. He also understands diet etc and it’s pushed him into a cooking route because he enjoys learning what’s good and bad for him which has motivated my cooking ambition too.
4- JDRF is a real and great community. I am not as involved now as my son is into his friends and girls but when he was younger he loved it. 1 example of how cool they are which is nerdy but in Halloween he didn’t want to trick or treat knowing he couldn’t have the candy anyway. Well they run a program and he can cash in his candy for video games etc.
5- I’m just an idiot here, but if you ever want to reach out I’ll pass my info to ya and be here 24/7 because in real life it isn’t always easy and there will come a day your kid will cry and hate diabetes and your wife will struggle in those times and you’ll have to be strong because it can be hard.
But I mean this, it isn’t the diagnosis it used to be and your child will grow up and still live a wonderful life.
I’m dead serious about being here for ya. I needed others and had support as well and the process gave me a whole different perspective on life.
Prayers for your family cricket.